I asked for some feedback from some people & someone told me
they felt my blog was negative. Our William is a blessing Autism
or not. He's taught me patience & perseverance while also raising
me up to a higher level than I ever thought possible for myself.
Its been 2 years since Will was diagnosed but I won't deny that
I didn't feel discouraged, scared, unprepared, guilty (like I did
something wrong or ate the wrong thing) at first. I was nervous
that I wasn't a strong enough person to raise a Special Needs
Child. I'm okay with saying that out loud.
I'm not perfect and its not always easy guiding our son through
this journey but God has entrusted this Angel to me & I will do
all I can for as long as it takes. I'm thankful each day that I've
met the kind, generous, experienced fellow warriors that I have
already. They bolster me up & renew my faith in the possibilities.
Upon Will's diagnosis, my husband & I went through our
individual struggles with wrapping our minds around what it
meant for Will & our family as a whole. I don't think there's
anything wrong with admitting your true feelings so that
others can better understand that how they're feeling is also
okay & acceptable. I've never been one of those moms that
made it seem as though there wasn't a thing I didn't love
about motherhood either. I'm honest. Hey you know what....
sometimes its not always fun having an audience while you
try to visit the rest room. I think that's true for most moms
& I'm okay saying that too.
Personally, I think its negative when I hear about families out
there not doing all that they can to help their kids. I read, research,
ask other parents and seek out any and all experts I can find.
I don't think its negative that I helped several parents in my
daughter's Preschool class exempt their kids from vaccinations;
or that I'm not shy about sharing our story & introducing my son
to new people so we can help foster education & tolerance. I won't
deny either that its a concern of mine that our "typical" child will
feel left out or become too much of a caretaker as she gets older.
I try to channel her desire to help into the pursuit of a dream of
becoming a Doctor or Therapist. She vacillates between being a
Veterinarian & "an Autism Doctor". Heck maybe she could be the
Vet for a barn full of Hippotherapy horses when she grows up.
This blogging thing is all new to me but I felt like I had experienced
something people could connect with and learn from just as I have
from the more experienced parents of Autistic & "typical" children.
We've started trying more biomedical interventions to go along with
PECS, OT, PT and Speech. If funds were unlimited then we'd be
doing Hippotherapy, B12 shots, HBOT, GFCF diets, etc. Funds
are limited but we're also working on that and Will is going to have
what he needs.
I hope you'll come back again as I share Will's story with you &
let you see what works for our family. Maybe another family
could also be helped in the process too.
Friday, April 24, 2009
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It's always important to fight through things and stay positive. At the same time, we have to get there first. We have to feel the feelings. If this blog is to share your journey you need to be real!
ReplyDeleteIn reading any of this, I am not seeing that it is negative; but honest...and real...and human! Please keep writing! I'll be reading!!
ReplyDeleteAs a mother of a special needs child I am RIGHT THERE WITH YOU. Don't let anyone who hasn't walked a mile in your moccasins make you feel guilty in the LEAST for anything you have thought, said, written or did. You know, life can be harsh sometimes... so forgive us if while we are picking ourselves up off the ground, brushing ourselves off, and tending to our wounds that we fail to come across like everything is all "sunshine and roses." What a blessing it has been for me to blog about our particular situation, help and inform others, and perhaps let off a little steam in the process. It's been quite cathartic, actually. And a lot cheaper than therapy! Please continue the good work God has been using you to do. And thank you for sharing what it's REALLY like to deal with autism... the ups and downs and everything in between.
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